I could relate to you a similar episode, but I don't think it's the same as what you're going through.
Everybody in my family has been taking turns helping out my Aunt, that has Neuro Militus Optica, a severe form of MS. She's the sweetest person on this planet, and still has most of her mind with her. But her body is broken, she went through the latest stem cell transplant... She's only the second person in the US to receive this type of treatment, and the fourth or fifth worldwide. She hasn't had a relapse since her transplant, but she hasn't gotten any better. She's always sick, or depressed. Her medications cause her to have a severe rash all over her body that burns as much as it stings, but they don't want her to stop taking it, in fear of losing the edge they think they have over her disease. So for the last four months she has been in agony, we can't touch her, because if we do it feels like we're pricking her with needles... But we want her to know that we all still love her, and care about her. She's talked to me in length about doing the Death with Dignity Program, I haven't said much to my other siblings, because I know they'll freak out. If it doesn't start getting better... I can't hardly blame her. It hurts seeing someone I viewed as being such a strong character throughout my childhood, so weak and frail that I could easily pick her up as if she was nothing.
I guess, what I'm trying to say is, if you want to talk just throw me a PM.
Bookmarks