It's just all rather surreal to me that his parents and legal guardians have the means to try further treatment, well-respected doctors who think that it's worth trying and yet their government is telling them that they have to let their child die.
I don't think anyone would fault the parents if they decided his case was hopeless and decided to end life support. Nor would anyone blame the NHS for denying payment for expensive long-shot treatment. But again, they have the means to provide the care on their own. So what if it's only a 10% chance? Let them try it. If it works, and Charlie is able to have any meaningful improvment- that's wonderful. If not, he can still be allowed to die.
It seems to me that all the dragging ass on this is only making any possible treatment less likely to succeed as his muscles further deteriorate and prolonging his suffering if there is any. Why not just let them attempt the treatment and then have the issue behind us?
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