It is necessary here to root my own conclusions in the framework of the Law and
within the available guidance. The Royal College of Paediatrics and Child Health
has produced guidance, published March 2015: Making Decisions to Limit
Treatment in Life-limiting and Life- threatening Conditions in Children: A
Framework for Practice’. The following is relevant:
The RCPCH believes that there are three sets of circumstances when
treatment limitation can be considered because it is no longer in the
child's best interests to continue, because treatments cannot provide
overall benefit:
II When life is limited in quality This includes situations where
treatment may be able to prolong life significantly but will not
alleviate the burdens associated with illness or treatment itself. These
comprise:
3 .Lack of ability to benefit; the severity of the child's condition is
such that it is difficult or impossible for them to derive benefit from
continued life.....In other children the nature and severity of the
child's underlying condition may make it difficult or impossible for
them to enjoy the benefits that continued life brings. Examples
include children in Persistent Vegetative State (PVS), Minimally
Conscious State, or those with such severe cognitive impairment that
they lack demonstrable or recorded awareness of themselves or their
surroundings and have no meaningful interaction with them, as
determined by rigorous and prolonged observations. Even in the
absence of demonstrable pain or suffering, continuation of LST may
not be in their best interests because it cannot provide overall benefit
to them. Individuals and families may differ in their perception of
benefit to the child and some may view even severely limited
awareness in a child as sufficient grounds to continue LST. It is
important, here as elsewhere, that due account of parental views
wishes and preferences is taken and due regard given to the acute
clinical situation in the context of the child's overall situation.
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