Charlie Gard

[Beskar]

This is a topic which hasn't been discussed here but it is frequent in the news, even with Americans taking a very odd and weird interest such as putting a bill through Congress to make Charlie Gard an American citizen. It has people like the Trump and the Pope being side-to-side on the matter too.

So for those out of the loop, what is this Charlie Gard stuff?

From Express:
Charlie has a rare genetic condition called mitochondrial depletion syndrome, which saps energy from vital organs and causes progressive muscle weakness.
The baby boy, who suffers from brain damage, cannot breathe without a ventilator and doctors say that he is unable to hear, see or move.
His parents from Bedfont, west London, desperately wanted their baby Charlie to undergo a therapy trial in America.
Specialists in the USA had offered an experimental therapy called nucleoside bypass therapy, which could have, in theory, helped Charlie produce the compounds his body is unable to.
But Great Ormond Street Hospital had said the experimental therapy would not help. Doctors said his life support treatment should be replaced with palliative care so Charlie could "die with dignity"

Video from the Parents:




In short, we have a child who is locked within himself (cannot communicate, move, see) with severe brain damage, in constant pain, and cannot function outside of life-support machine which is doing everything on the behalf of his own body which cannot support itself. The treatment proposed has not even been fully tested on lab-rats and is essentially just speculation. It has only estimated 10% chance to be 'clinical significant' (reminder: clinically significant is different to practical significant). It is essentially using the child as a lab rat with no viable outcome for him even if it did work in enabling the body to support itself (breathing on its own, which is still unlikely) it is not a miracle cure to reverse a vegetable state. This is a very sick child.

Great Ormond Street Hospital is pretty much the number 1 children's hospital in the UK. Due to the Hospital wanting palliative care for him so Charlie can die with dignity, the parents have fought this decision in multiple courts where they have lost, including the European Court of Human Rights. This case has attracted a great deal of media attention, especially negative press against the hospital labelling the people who work there as "Child-killers" and making death threats against them.

So what are the Orgah's opinion on this case?